Epilepsy Support Centre enhances the lives of people who are affected by epilepsy and seizure disorders by providing a network of services that educate, support, and build community awareness.
SUPPORT people with epilepsy and their families.
RAISE AWARENESS , dispel myths, and break down the stigma of epilepsy.
EDUCATE our communities about epilepsy and seizure first aid.
- Category: News
- Published on Wednesday, 17 September 2014 09:30
We have secured funding to implement a pilot project in Windsor/Essex County and are currently seeking an Epilepsy Community Liaison. This is a full time contract position, with the possibility of renewal for up to 3 years.
The Epilepsy Community Liaison will be responsible for providing support, education and seizure first aid training for people living with epilepsy, their families, and their communities. They will also be responsible for health promotion and outreach to health care providers through Windsor/Essex County. The position requires extensive data collection and reporting.
We are looking for someone who has shown outstanding personal initiative and passion for their work, with experience in advocacy (in school and/or healthcare setting) and public speaking, working with health care providers and knowledge of community resources. Post-secondary education in public health, health promotion or social work is preferred. The successful candidate must be able to work independently, with minimal supervision, collate data and successfully meet determined program goals. Must be mature, self-directed and able to work in a home office with ability to travel throughout Windsor/Essex County.
Role and Responsibility
Clinic to Community Program
- Develop partnerships with local healthcare provider sites
- Set up 'lunch and learn' or epilepsy in-service with local healthcare provider teams
- Facilitate 30 minute professional development session or 'lunch and learn' with healthcare provider teams
- Develop a linkage plan with each healthcare provider team to facilitate timely referrals of persons with epilepsy to The Centre
Student Support Program
- Develop partnerships with local school boards and local school personnel
- Facilitate classroom presentations to school age children
- Facilitate professional development sessions for teachers and educational assistants
- Liaise with classroom teachers, special education consultants and parents to create individualized safety and education plans for students with epilepsy
Epilepsy Education for Persons with Epilepsy (PWE)
- Facilitate 30 minute epilepsy education in-service for persons with epilepsy and their families
- Teach PWE to use a seizure diary and provide anticipatory guidance on co-morbidities and risk management
- Initiate referrals to Client Service Coordinator when indicated
- Recruit PWE to become peer mentors and promote participation in agency programs and events
Data Collection and Maintenance of Program Files
- Maintain accurate and up-to-date files on each healthcare provider team
- Maintain accurate and up-to-date files on each newly registered client
- Administer pre/post survey to healthcare providers who attend professional development session
- Administer pre/post survey to PWE who receive the 30 minute education in-service
- Collect program data ( # of presentations, # in attendance, type and # of referrals)
- Provide recommendations to modify the 'Clinic to Community' and 'Student Success Programs'
- Keep a program journal of successes, barriers, improvements, challenges
- Monitor and adhere to program budgets
- Participate in staff meetings
- Provide Windsor/Essex board member with monthly report
Interested candidates are requested to send a resume, cover letter and salary expectation by October 3rd, 2014 to:
While we appreciate all applications, only candidates selected for an interview will be contacted.
- Category: News
- Published on Tuesday, 29 July 2014 11:32
Check out the latest news about the First Annual Seize the Day 5K Walk & Run.
- Category: News
- Published on Thursday, 29 May 2014 15:41
When a London member, who prefers to remain anonymous, heard of the recent funding challenges faced by Epilepsy Support Centre, he called the Centre to see how he could help. He learned that the loss of funding would make it difficult for Epilepsy Support Centre to offer the critical programs and services that help educate the public, reduce the stigma associated with epilepsy, and support families and individuals when they receive a diagnosis of epilepsy.
Within an hour of that phone call, Epilepsy Support Centre received the donor's $8,000 cheque. This generous donation will fill gaps in public education and support services funding and ensure they'll continue to be available.
"Facing life with epilepsy on a daily basis becomes a lot easier when you know that help is a quick phone call away," says the donor. "Being able to give back to an organization that works tirelessly to inform and educate the public while also providing support outside of a hospital setting is a wonderful feeling, and the least I can do."
Epilepsy Support Centre, its staff, board of directors, and members would all like to thank the donor and his family for their generosity. Every dollar helps the Centre fulfill its goals. Gifts like these feel extra special when they come from our members.
If you would like to help, you can make a donation through Canada Helps or call our London office at 519-433-4073 x 202.
- Category: News
- Published on Thursday, 29 May 2014 14:21
The Sarnia branch of Canadian Red Cross is incorporating the Do You Know What To Do? seizure first aid video in their first aid and CPR training. After hosting a Seizures 101 presentation by Epilepsy Support Centre staff, Community Services Coordinator of Canadian Red Cross, C.J Taylor, approached the Centre about including the video in their standard First Aid courses.
"I think by showing the video, it will bring more knowledge to our participants than what we have in our First Aid and CPR book," says Taylor.
According to Taylor, approximately 100 to 150 people take first aid training at Sarnia's Canadian Red Cross each month. If there is positive feedback to the video, it will be added to all courses offered by the branch, which could result in 200 to 250 people per month receiving epilepsy information and seizure first aid training.
Taylor was impressed with the video because he says seizures and seizure first aid "is explained so well." He feels the video will help the public become better educated about the proper response techniques required when someone is having a seizure.
"Some days we host three courses per day in and around Sarnia-Lambton and added information for any topic is a bonus."